Friday, September 24, 2010
Sorry it’s been a while since an update. Got a lot going on in my crazy life. Got back from Houston last week. Most recent results were not what I wanted. Good thing: tumors are down 26% since I started the trial in April. Bad news: They show 3% growth since last scans. 3% is not that much and the doctor even said it’s not really measurable, but it’s still an increase and I hate it!!! I want the tumors to be gone! So they are keeping me on my regular dose of the BRAF and this past Monday, Sept 20th, I started 1mg of the MEK pill. We are hoping the combo of the two will work together and start shrinking the tumors again. The MEK is the first clinical trial I was on. The one that broke me out so bad and I swelled up like a balloon. So I was worried about starting it again. BUT, it’s such a low dose my clinical nurse said they have not seen anyone with a rash. Thank goodness!! That was absolutely horrible! So that’s where we currently are. I go back on Oct 13th and 14th for check ups. I see the dermatologist this time. I have a mole on my leg that has changed and I am wanting them to look at it. Other than always being tired and not sleeping at night, I’m doing okay. Brayden’s first football game is tomorrow!! GO COWBOYS!! I’m so excited but nervous. I’m always scared he’s gonna get hurt. He needs some meat on his bones!!! LOL
Wednesday, August 11, 2010
Monday, August 9, 2010
Friday, July 23, 2010
And the results are in!
AND THEY ARE AWESOME!!! No tumors have grown. Again some have shrunk and others are stable. Meds are still working. I'm telling you I was so worried about the results. It never gets any easier. So I just continue taking the medicine and hope and pray it keeps working. Right now Im scheduled to have scans again on September 16th. That is if the company that makes the meds doesn't ask me to have them early again. I'm feeling good, and couldn't be doing better! I'm super excited and am so blessed to have such an awesome support system. Life couldn't be going any better. ;-D
Tuesday, July 20, 2010
Wating Waiting Waiting....
Okay, scans are done!!!!!!!!!!!!!!!! Now the long wait until Thursday for results!!!
It's that time again!!
Yep, scan and results time AGAIN! I've gotta go here in about an hour to start getting prepped for my scans. The scans wouldn't be so dang bad if I didn't have to drink that NASTY barium. Man, that stuff is gross! So I got scans today and results will be Thursday. I see the doctor at 9am on Thursday. I'm always nervouse as heck when it's results time, but this time I'm really scared! I'm so scared to get bad news. I'm scared they are going to say the meds aren't working anymore and the tumors are growing again. My worst fear!! I try my best to stay positive, but sometimes it's really hard. Mom, Jamie and Brayden are with me this trip. David stayed back to work. He came with me the last trip. Jamie and Brayden are having fun swimming right now while me and mom rest before heading up to the hospital. I'm super excited about tomorrow. We got tickets to the Barnum and Bailey Circus that is at Reliant Stadium. Being from such a small town all we've ever been to are the little rinky dinky ones. I'm so excited to be able to take Brayden. If you go an 1.5 before show time you can go back and see all the animals. So of course were going!! I just hope Brayden does okay with the animals. Ever since his dog attack he's been really stand offish around any animals. So we all really excited about tomorrow. I'm hoping it will help put my mind at ease for a little while. As soon as I get results Thursday I will for sure let everyone know.
Monday, June 28, 2010
Latest News
So I'm running a little behind, but by now most of you know that I got more good news last week. Scans show some tumors have shrunk some more and the others are stable. So nothing is growing!!!!!!!!!!!!!!!!!!! Awesome Awesome Awesome!!! It was a long week in Houston but it was so worth getting the good results.
So I want everyone to click on this link and watch this video!! Donna lost her beautiful daughter Jaime to Melanoma in 2007. This is a PSA that she has done for the AAD and will air on TV, In Theaters........Donna did an awesome job and I want to share it with all of you. Tanning kills!! That's all there is to it!!!
http://www.aad.org/media/psa/index.html
So I want everyone to click on this link and watch this video!! Donna lost her beautiful daughter Jaime to Melanoma in 2007. This is a PSA that she has done for the AAD and will air on TV, In Theaters........Donna did an awesome job and I want to share it with all of you. Tanning kills!! That's all there is to it!!!
http://www.aad.org/media/psa/index.html
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