Tuesday, September 22, 2009

Update

Just wanted to give a little update to let everyone know how things have been going. I went back to work yesterday just part time. It feels really good to get out of the house. I'm going to work part time until I can get myself physically ready to be able to handle full time. I'm so glad to be back at work. I missed everyone and it was so good to talk to everyone again. I'm feeling good and my back is doing better. It still bothers me but nothing like it did. I'm pretty sure with time it will be back to normal. As of right now the plan is to go to Denver Colorado to the University of Colorado to start the Plexxikon treatments in aprox 6 weeks. That could change depending on if an open spot can be found at another hospital. That's still being looked at. M D Anderson's slots were full that's why I will be going to another hospital.

Brayden started football practice last week and is loving it!! He just seems so little out there. I tried to get him to stick with Soccer but between him and David I had no chance LOL. I believe their first game will be next weekend. I'm going to be a nervous wreck watching him down there playing with boys twice or even three time his size!! But he wants to play and I'm not going to keep him from playing just because I'm being "Over protective Mom."

I guess that's about it for right now. Were getting back to "normal" a little around here even if it's just for a couple weeks. I got Brayden's school pictures today and I must say they turned out AWSOME! He's so photogenic! ;-)

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Thursday, September 10, 2009

I have the worst luck in the world!!

So by now most of you know the news. I found out Tuesday that the IL2 treatments I was taking did not work. These are the treatments I was in the hospital for that kicked my butt. The doctor said the tumors on my lungs are slightly larger than they were 2 months ago. So that tells us the treatments did not work. I was praying the tumors were at least a little smaller, but no. Of course not the news we wanted to hear. Very devistating and very VERY scary!!! Since it's not working I will not have anymore of the treatments. So what's the next step???

Well I will be traveling to Denver CO to start a treatment called Plexxikon. I don't know a whole lot about it right now. I know it's a pill I will take like twice a day. It supposed to target the tumors and shrink them. My nurse told me they have another girl that tried everything I have, then tried this pill and they cannot see any cancer on her lungs as of today!! She said she was a worse case then me, meaning her tumors were a lot larger. So that gives me hope!! But we know everyone is different and the treatments are different for everyone. Im currently waiting for them to call me from Denver. I called them yesterday and gave them all my info. The reason I'm having to travel is because this is a clinical trial. They have no opening for it at MD Anderson and since my doctor wants me on this trial I have to travel to Denver. Their trial has not started yet, so I'm on the list to participate in it. So don't think MD Anderson is giving up on me. That's not the case at all. They are and always will still be my main doctors. So right now Im waiting to see when I will be heading to Denver.

David has taken off a few days to be with me and help me deal with everything. It's so hard to have such high hopes and they be shot down time after time. BUT, like I've said before I'm not going to let this control me. It may take me a while to get back to my old self, but believe me I'm trying my hardest to think positive and keep going for my family. I want to thank everyone for all the wonderful prayer and support. I'm so blessed to have each and everyone of you in my life. You are what makes it possible for me to get through this.

Sunday, September 6, 2009

What an eventful trip!!

I finally made it home yesterday from Houston thanks to my little brother. I flew up there by myself to get my scans done and was to fly home Friday evening. Well I've been having pain in my lower back and I still don't have a clue what I've done to it. So I get up Friday morning to get ready and I can't walk. The pain in my back is so bad. I tried and tried to figure out a way to walk so it would hurt so much, but I had no luck. As soon as I would try to take a step my legs would buckle and down I would go. So after calling my mom and David freaking out we finally came to the conclusion to call the hotel and see if someone could come get me in a wheelchair, because I had to get to my appointments. I called the front desk and within minutes had someone come get me in a wheelchair. I had to be pushed from one appointment to the other. While I was waiting for my MRI my nurse came and found me and asked me many questions. I told her I had no clue what I did and since it's not getting any better I'm scared something might be wrong. She was so sweet and took good care of me. She ordered me some heavy duty pain pills and also some meds that would relax me. By the time I started my CAT Scan the meds kicked in and I felt better. The pain didn't completely go away but it was a lot better. I could even take a couple steps here and there. So since there was no way I would be able to walk through the airport to get home, my little brother came from Austin and we stayed the night in the hotel and he drove me home yesterday. He saved me!!! Today I'm still hurting pretty good. I can walk a little bit. It hurts to walk but there's stuff I have to get done because we head back to Houston in the morning. They have set me a MRI of my back on Tuesday to make sure that it's not the cancer causing the pain. So I'm really praying I just twisted it really bad. It's scaring me to death!!!

I get my scan results on Tuesday when I see my doctor. This will tell us if the treatments have been working. So this is big news and I'm really nervous about the results. After I see my doctor I have my MRI on my back and at some time I have to get my catheter put back in and then I will be admitted back to the Hospital to get ready for round 3. They will probably start the treatments Wednesday morning. So i'm not sure when I will get to come home. All depends on how many doses I can handle.

Everyone keep me in your prayers for the next week. It's going to be a very hard next week and I need all the support and prayers I can get.