Thursday, February 25, 2010

Not so good day

So my day started out wonderfully until I checked the mail. Ugh, just one more thing to worry about. Okay here's the deal. The tumor they removed from my lungs is going to be kept in a lab and left to grow to produce more cancer cells. Once it get's to a certain point they will take the cells and make a vaccine out of it to put back in my body to help fight off the rest of the melanoma I have. I think that is cool as can be, but there is only a 50% chance the cells will grow. I will not know for about 6 weeks if it works. I thought that was going to be it. Oh no. If the cells grow I will be put in the hospital for 14 days and go through Chemo and IL2 plus the injections of the vaccine they will create. Were talking MAJOR major treatments here! This freaks me out! The IL2 is what I did last year where I was in the hospital for the high dose injections that made me so sick. It kicked my butt BAD! To have to go through this on to of more chemo, MAN scares the crap out of me! I will do what I have to do to get better, but just the thought of having to do high dose IL2 again really really stresses me out. I don't even know for sure if I have to do this yet until we get the results to see if the cancer cells grow, but I feel like this is never going to get easier. Anyways that my wonderful news for the day. I hope and pray the cancer cells do grow and I'm able to do this, but I really REaLLY could do without having to go through the IL2 again.

Wednesday, February 24, 2010

Surgery update

Sorry it's taken me so long to update this thing, I just haven't been up to it. As most of you know I had my surgery last Wednesday. They went in and removed a portion of my right lung where the biggest tumor was. Found out after surgery they removed about a lemon size piece! Yeah, way bigger than I was expecting. Surgery went good. I had so much support there and back home that I just knew everything was going to turn out okay. All of my last surgeries they knocked me out before I got to the surgery room. Not this time. I had to move from my bed up onto the surgery table then out I went. Next think I know I'm waking up to David coming towards me. I have to small incisions, one under my right arm and the other one on my upper back. They are about an inch or two long and neither one has bothered me a bit. Then I have a spot where the drain tube was inserted on my side that's another story. I think I had the grand daddy of all drain tubes. It hurt in the hospital and it still hurts!! I got out of the hospital the day after surgery. I had no air leakage and nothing draining so I was outta there! We of course stayed one more night at the hotel, just in case, and plus there was no way I was gonna make the long drive home that day. We got home Friday and I've just been resting ever since. Recovering is soooooooo much easier this time around. I still have nightmares about my last surgery, drain tubes, pain pumps....man that was awful! Seems like every day I'm doing a lot better. I still feel pressure in my chest, but it's more sore than pain. I'm hoping to get back to work soon. I hate, hate being stuck in this house. I can't drive for two weeks, and I'm not to pick anything heavy up. They said I should be back to normal in about 6 weeks. I'm waitin to hear back from Nydia, my nurse to see when I can go back to get started on the next trial. The trial is a lot like what I was one. It just consist of taking pills this time though, no chemo YAY! It also targets the BRAF mutation that I have. Side affects are nothing like the last trial. They said sluggishness is the main thing. So no rash, which by the way I'm still working on getting to go away, and no swelling up like a balloon. I actually have knuckles and ankles again lol So as of right now were waiting to get into a new trial. I know it's going to take time to find the right meds, but I know in my heart we will find it and it will keep my tumors from getting any bigger and also keep the cancer from spreading anywhere else. And I'm never gonna give up on a cure being found. Again I want to thank everyone for the continueous support and prayers. Without all of you I don't know how my family and I would make it through this.

On a side note, MY BABY IS TURNING 10 NEXT WEEK!!!!