04/23/10

Got home Wednesday from Houston. I had to go for another wonderful 10 hour day of blood draws and EKG's. Everything went smoothly. I am off the MEC meds for a full two weeks. I have what they call a "clean out" period. I'm really hoping I start feeling better since I will be off the meds for the two weeks. Since I started the MEC meds I have had horrible headaches, yucky stomach, the WONDERFUL rash (which by the way is no way near as bad as it was the first time) and I have small sores in my mouth that is causing my throat to hurt. The rash is on my scalp again which is killing me!! It itches, hurts and is just annoying! I will fly back on Wednesday the 28th. I start appointments early Thursday morning. I have blood work, EKG, more blood work for clinical use, I see the Dermatologist and also see the doctor. Full day on Thursday. Then Friday I have an Echo. I hate Echo's, they are so uncomfortable and it kind of hurts because they press do dang hard on my chest. Then nothing else until Sunday morning. I will go in for more blood work and then I will fly home. So it's going to be another long stay in Houston. My step mom is going to be in Houston with her sisters during the same time. Her sister that I have mentioned in an earlier blog has finished her treatments for breast cancer. Woohoo!!!!!!!!!!!!!!!!!!!!!!!!!!! I was going to go spend time with them that Friday and Saturday, but I found out I have the Echo scheduled on Friday so that ruined our plans. So anyone there in Houston that wants to come entertain me Saturday, I will be at the Holiday Inn on Kirby LOL. On that Monday, May 3rd I will start talking the BRAF meds full time. Not sure yet what all the side affects are, but I will definately find out when I see the doctor. So everything is going okay, all except me feeling like crap all the time.

I also want to ask for everyone to keep the Rich family in your prayers. For those that don't know Bruce passed away this past weekend. I found out early Sunday morning and it just devistated me. He was the sweetest man and i am going to miss him and our talks. Everytime he would come in the office we would always spend time to update each other on how things were going, what treatments we were going through and let each other know of any new treatments we had heard about. It was so nice to talk to someone that was going through the same thing because we truely understood how each other felt. I didn't get to attend his funeral because I was stuck in Houston. Even though I was not there in person, my heart and my mind was with them.